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At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
I take a liquid that combines Omega 3 and D3 and the web site of the manufacturer states that "Supplemental vitamin D should be used with caution in those with sarcoidosis, lymphoma, (which I have)… read more
Maybe depends on the type or we just unlucky to breath something in the air.
I read the article which made me think about vitamin D and cancer Many years ago I took a supplement for vitamin D which my cardiologist prescribed. When the numbers went up she told me to stop it. Now I’m wondering if my D was low before I found out about my diffuse B Cell lymphoma. I currently told my primary about having low D so she added that to my blood work I will be getting this week. I wonder if the blood work I got during chemo ever checked my D levels. No mention from doctors ever… read more
I take a vitamin D3 every day but a doctor told me years ago to start taking them and that was long before my diagnosis. So having cancer can make it low?
Anna
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Since I just recently was diagnosed with CLL I am not yet on any form of treatment. I am beginning to have joint and bone pain. I thought it to be from arthritis or the fosomax which I just started taking but after reading some symptoms of the lymphoma, it may be from the CLL. What is a safe med to take for pain? At this point I’m just so confused and becoming more frightened. I will ask the oncologist at my next appointment.
Cathy
Thank you. I have less pain since I stopped the fosomax.
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
I have read that this condition is rare but I have a biopsy for breast cancer coming up and I also have non hodgkin lymphoma. I am wondering if you can have both at the same time!
Angela
Yes. But mine was just a lymphoma node in my breast
I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
