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Has anyone with NHL had a terrible time with side effects of the booster? I got mine on Sunday and have had a terrible reaction! So weak sick, tired the works!????
Denise I feel the same -- that there is a connection. I believe the vaccines can "pull the trigger," on something brewing in the body such as cancer, autoimmune disease, etc. I know 5 people diagnosed… read more
Opinions or no opinions from politicians. These vaccines, not like others, that have years of testing to make sure they're safe. Would raise a eyebrow? They had only been tested on rats, which most… read more
Any thoughts on whether those of us with lymphoma should get the shingles vaccine? My oncologist today told me I should get it. I've been pretty die-hard about not introducing toxins into my body....and I'm thinking that is another one. But he said getting shingles would really be hard on my body with the lymphoma.
Rebecca
Thanks I’m going to ask my oncologist when I go in next week.
No. I don’t believe my cancer or anyone else’s was Covid vaccine related. I was diagnosed with NHL / DLBCL in August 2021. I had already had 2 COVID vaccines earlier that same year. My oncologist… read more
I am in remission now. Live on Vancouver Island in BC
I think this should be investigated further.
Hello Group - My name is Pam, 63 year old retired nurse. I just finished 6 months of Bendemustine/Rituxamab (BR) treatment for follicular lymphoma stage 4. The majority of providers are recommending a 2 year - every 2 month infusion of Rituxamab. I've also heard some LLS physicians state they no longer use this protocol due to weakening of the immune system - with COVID and all still active would increase our chances of getting it. Anyone have advise/opinion on this? I personally don't feel… read more
My auxiliary nodes swole afte Covid booster. I had two ultra sounds but after two were shown to be growing, biopsy ordered. Biopsy results low grade lymphoma leukemia. Doctor referred me to Hematology. CDC showed high WBC but said smudge cells present. Has anybody had this and if so does the smudge cells mean my low grade lymphoma is CLL? I’m devastated.
My primary care Dr kept tell ih ng me that after my (3) CoVid Boosters the swelling in the armpit area "is nothing." 🙄 They lasted 3-4+ weeks, happened on both arms where covid inj was given.
You… read more
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Ex. My son is immune suppressed bcs of medication he takes for a rare chronic disease and we are cautious but not overprotective of his environment. I assume it is the same for ppl with NHL watch and wait? Or are there additional precautions against infection, beyond the normal precautions, specifically related to cancer? Thanks
I find the watch and wait so hard. For me is like playing with a loaded gun, the problem is that you do not know really what the caliber is going to be. I just finished treatment for a FL Grade 2… read more
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
