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June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
She’s in England and would like to try alternative therapies
I was diagnosed with T-Cell and have been through a lot. 6 rounds of chemo put me in remission and a few months of being in remission, I went through a stem cell transplant with 11 more rounds of… read more
I am having RCHOP for NHL large B cell stage IV. I just finished my 4th chemotherapy. Still having night sweats off and on. Has anyone else found this in their treatments? Thank you.
Susan9
Hi! I hope you have a peaceful and blessed day today. Your bed sounds like a God send for you! So glad you have it! I sincerely hope you are blessed with many many more days, months and… read more
I'm 20 yrs. into my journey with nhl follicular b-cell indolent, many treatments, many relapses...treatable not curable
now we're considering a CAR-T cell treatment - a transplant procedure of my T cells approved by FDA in 2016...and people are experiencing complete remission as in possibly cured
Has anyone undergone this particular treatment & if so I'd greatly appreciate the opportunity to chat...
It's a pretty intense procedure with lots of possible serious side effects...
Thanks for any… read more
Dennis3, I am so sorry CAR-T didn't work for you and hope the chemo will. When I first heard about CAR-T, the cure rate was only 40%, which made me reluctant to try it. But I didn't really have… read more
I didn't see it listed as one of the "lymphomas". I was diagnosed February 20, 2019. I had chemo and was told in October that I was in remission.
Hi I was diagnosed with diffuse large b cell double hit and stage 4 in March 2023. Went into remission in October after their 6 chemo treatments of rchop. Got to do most of the infusion (24 hrs at a… read more
I am reading here that a lot of people have been receiving treatment with a lesser stage (I & 2) than I have. (I have Stage 3 *follicular* non-hodgkins lymphoma). I have been on watch and wait since my diagnosis in April 2019. I'm wondering why the oncologist is holding off on any treatment. Why wait until it gets bad? Has anyone gotten treatment while being asymptomatic? If you do have symptoms, at what point did your Dr decide to start treatment?
Thank you so much for all your replies. 🌻. Definitely God sent.🙏. Be blessed, be strong💐. Needed to read this, like now🤕. What a coincidence, am at Onco. Clinic waiting to be called, scheduling 8… read more
I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more
I'm Glad CAR-T worked for you guys. In my case it did not. When done only one small spot left. 2 months later Pet-Scan Spot got bigger. Now back to square 1.
