After almost five years from DBCL (non Hodgkin’s) my latest scans and blood work appear fine except for low hemoglobin and the t-cell rearrangement test. The T-cell rearrangement test was positive for T cell lymphoma which I had at the time of my initial diagnosis. My oncologist feels it isn’t significant at this time since all scans are clear. I’m somewhat insecure about these results. Anyone have experience with this?

And my family who says yeah right you're just milling this when I ask them to get the dog food. Yes s couple months ago I could easily throw 50 lb on my shoulder now I can't even lift it. If I have to walk to the kitchen one more time I'm going to cry. Friends who stop texting because you look good. Why do they assume I'm lying?

One of the more pronounced effects, for me, of CLL and the chemo I did is a lack of stamina. I am essentially home bound. So what to do? I'm always looking for ideas, ways to spend time constructively. If you find yourself with time on your hands what do YOU do to keep from being bored 😴? Here's your chance to be share with others. 🙂

When illness was a hypothetical — a promise in a vow, or a far-away romanticism found in the mildness of “growing old together” in uncomplicated ways — I assumed that illness would cause the rest of the world to disappear. I assumed we would suddenly feel closer, more intimately connected, and that our troubles and everyday frustrations would melt away into the background of the burning dilemma we face together… of the thought of one of us being unwell, or the fear of loss.

But that’s not true… read more

Hi friends, I recently had a bone marrow biopsy that showed that 37% of my bone marrow is being affected by the marginal zone lymphoma. My doctor has recommended 4 weekly treatments of Rituximab. I am curious to know from any of you who have had treatments with this what your experience has been and what I should expect. My understanding is that some people have allergic reactions to the treatment and that it also affects your immune system, but other than that I don’t know much. Thanks in… read more

Examples: Watch movies, listening to music, hobbies. If you have hobbies tell us about them. 😊

Music, images, words or even smells - have always helped me connect to my feelings. It can be so powerful.

A picture/image that makes you smile, laugh or cry. One maybe that draws you in though you don't necessarily know why.

A favorite quote.

A song where the music or lyrics speak directly to you?

You can explain the feeling/connection or not, as you wish. The thing is that you share something meaningful to you.