Praying you find a donor soon. 🙏🏼
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Thank you very much for your story and wish you luck.
I have read that this condition is rare but I have a biopsy for breast cancer coming up and I also have non hodgkin lymphoma. I am wondering if you can have both at the same time!
Angela
Yes. But mine was just a lymphoma node in my breast
I was diagnosed with Follicular Non Hudgkin's Lymphoma last year in November. Had 4 Month Chemo with Bendeka. Now in remission, and was recommended to do a 2 year maintenance treatment with [[treatment:Rituxan Hycela:5c648bd265df61506ecba9a7]]. Anybody else has the same treatment? Is it standard to do it after chemo? What are the long term side effects? I feel fine, but still worry about this
Anybody completed the 2 year? Was any recurrence of the cancer shortly after finishing treatment.… read more
I tried the maintenance once and mine recurred while on it. I do much better just getting a round of rituxan when it recurs.
Hi...Have had CML for about 9 years. Have had chemo and several meds. I finally found a drink that solved the GI side effects. Stopped the diarrhea and nausea quickly. It’s called ENTERADE. A liquid… read more
I don’t know yet. But after my recent investigation it was very fast that they wanted to see me again. With my other cancer (brain tumour) I get to see my oncologist on the same day after the MRI. I… read more
At this point, I’ve decided not to start treatment
I have lost two friends in the last year to other types of cancer
They both went through chemotherapy and radiation treatments.
They continued telling me that the chemotherapy had caused many uncomfortable side effects and weren’t sure whether it was causing more painful issues than it was worth.
They both have passed in the last three months.
They both expressed to me that their quality of life, and getting some extra months, wasn’t really… read more
I’m on watch and wait for follicular lymphoma for a little over a year. Bloodwork , CT and PET scans. I got a second opinion and they agreed watch and wait was best. I’m hoping I can go a long time… read more
I received my biopsy results today. I have
T cell NHL. I am being referred to a doctor that specializes in this.
Has anyone been diagnosed with this?
Thank you.
I was just diagnosed with Nodal Follicular Helper T Cell Lymphoma. Looks like mine is localized. After fairly good scans and blood work; the oncologist told me it was localized and no treatment… read more