I was just diagnosed a week ago and don't meet with my doctor to discuss next steps until after the new year. He mentioned possibly doing "watch and wait" method and I've read a lot that backs that up, which really surprises me. Why would you wait until things got worse to pursue any type of treatment?
For some types of blood cancer there's no evidence that early treatment, when you have no symptoms, improves outcomes. Instead, doctors recommend saving treatment for later, when it will have the best… read more
June 2019 i was diagnosed with primary cns lymphoma.
This year in march i had an ovary removed. They found diffuse large b cell lymphoma. My oncologist wants to put me on the r-CHOP regimen with stem cell transplant to follow as maintainance therapy.
Any thoughts on whether those of us with lymphoma should get the shingles vaccine? My oncologist today told me I should get it. I've been pretty die-hard about not introducing toxins into my body....and I'm thinking that is another one. But he said getting shingles would really be hard on my body with the lymphoma.
Rebecca
Thanks I’m going to ask my oncologist when I go in next week.
I have had swollen lymphnodes in my groin for about 15 months, my right armpit for about 4 months, and in my neck which the hema-oncologist discovered about almost 6 weeks ago. Night sweats have been occurring for about 15 months now, however they used to happen randomly here and there (few times a month) they are now every time I fall asleep. I now wake up 2-3 times a night to change because I am drenched and end up shivering for 30-40 min afterwards. I have had terrible joint/body pain for the… read more
My SLL/CLL was discovered through a mammogram which showed my armpit lymph nodes were swollen. Then I was sent for a biopsy which diagnosed the SLL/CLL.
Chemo is directly related to new cancers in our bodies. My doctor also told me indolent lymphomas often lead to other cancers.
Sad to see that so much of the medical industry is just a business looking for perpetual customers (patients).
Maybe depends on the type or we just unlucky to breath something in the air.
Feel like doctors just don’t care or just brush you off like your making something out of nothing?
Yes all the time I did you just have to have patience
I went to oncology and he gave me copy of biopsy. Does anybody know what it means when it says mature low grade B-cell lymphoma with CD5 co-expression , most consistent with small lymphocytic lymphoma/chronic lymphocytic leukemia
Wanda, I was originally diagnosed with what was called an indolent NHL. or lymphoplasmacitic lymphoma. One valuable resource I used to educate myself was the International Waldenstrom's… read more